Yesterday was the 4th of July and I am very happy to say that it was not 80 degrees. Hot weather makes me an unhappy camper, anything over 70 is no bueno for me. This MS has driven me and the heat to be mortal enemies. Heat makes my cranky, exhausted, and nauseous. I pretty much do not want to do anything when it is too hot except sit around my apartment with my fan blasted right on me.
For awhile I thought I was just a complainer because I was always too hot when no one else was. My boyfriend even called me a weirdo because of it, come to find out it was MS this whole time. I used to go to Mexico and Texas during the summer and never complained about the heat or felt the way I do now.
It is really unfortunate for me because I live in paradise a.k.a. Santa Cruz, California. The weather is mostly warm but we always have a cool ocean breeze. I live about 2 blocks from the beach and frequent there often except when it is too warm. The last time I was out in the sun for a couple of hours on an evening for my sisters graduation I almost died. Okay not literally died but the whole weekend after that I felt like pure crap. Not to mention I had to leave my sisters graduation dinner without eating because I thought I was going to faint.
I know this is something that a lot of MS'ers can relate too. I just recently got a cooling vest from MSAA which I wear at work under my scrubs because my working space is like a sauna. It helps but the ice packs go warm after a few hours, maybe I am just to hot to handle!
Here is the MSAA cooling program page, print out application and mail in takes about a week to get your vest.
Another blog done!
Estefana
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